About

My beautiful, complicated son, Jordan,  was born November 24, 2013. He arrived with Trisomy 18 and Klinfelter syndrome. He beat odds to survive a premature birth at 30 weeks and a complicated diagnosis. He blossomed into this amazing little man, with a big personality, though he struggled a lot. Besides the prematurity, he had difficulty with feeding.  A G-tube was placed in Jordan’s stomach when he was about 4 months. He was growing better and improved until he was about 9 months. He had unexplained fevers and stopped growing. We tried to increase feedings but he had increased feeding intolerance. We hoped we could give his gut a break and go back to at least tube feeding, so a broviac for TPN feeding was placed when he was about 10 months. But, as with all things Jordan, our plan was dashed when a tumor was discovered. After much prayer, we decided to have the tumor removed. By Gods Will he survived the surgical removal of an 8 cm hepatoblastoma. After weening off serious pain meds, we tried to remain at home. But he continued to fight recurring infections, anemia, and neutropenia among other issues. He passed after an acute respiratory illness (we think pneumonia) on April 3, 2015.

It may seem like a tough and pointless life. But Jordan changed everything for me, for my husband, and for everyone he touched. His fight, his heart, and his grace were a daily blessing for so many people. Because of his neutropenia and immunity issues, we were not able to have many people around to meet him, so I wrote a lot on Caringbridge.org. It helped me to record our days and to share Jordan’s amazing life with more people. It also helped me stay sane. I wanted to continue to write, but I didn’t feel comfortable continuing on Caringbridge. That was where I shared his vibrance and his life. So here, will be the aftermath of losing Jordan from the Earth. Instead the light of his life will hopefully guide us as we continue our journey.

8 thoughts on “About

    1. I am very happy that you decided to continue writing as we will be sharing with you your thoughts and feelings. This makes me feel closer to you and to Farid. Thank you for giving us this chance.

      Liked by 1 person

      1. Thank you for commenting and for your support. I get in my head a lot, so it is helpful to clear the dust out and share. Glad you are following!

        Like

  1. Dear Anna I’m really glad I managed to log to ur blog, I have no idea why it gave me some issues at first… I would love to read your blogs and your outloud thinking, it makes me feel I am near U & Farid somehow… More connected to both of U…. And keeps me alerts of our bundle of graces Jordan that touched all of us 😘😘😘

    Liked by 1 person

  2. Hi there,
    I’ve nominated you for a Liebster Award. I think your Blog will help so many people through their emotions when losing their baby or someone close to them.
    Kind regards
    Bee

    Like

    1. Hi Bee!

      Thanks for the nomination! I enjoyed your honesty answering the Liebster questions. I will try to do you proud.

      Many blessings,
      Anna

      Like

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